Hello, friends! Sorry to be sparse around here lately–between Hawaii, jet lag and this crazy week (catching up on cleaning and so many appointments), I haven’t found the time or energy to write.
I’ve been having some odd health things lately that actually mirror some of my younger son’s health problems (unexplained circulatory stuff and joint hypermobility) so we’re looking into potential causes for that with a rheumatologist. And I’m trying not Google things because I get all sorts of stuff like connective tissue disorders and cardiovascular diseases… and those don’t sound very fun at all.
Yet I’m torn because for little A’s sake, I want a diagnosis for him. We have seen 14 specialists in 14 months (and counting!) and we still have no answers for his weeklong hospitalization, ER visits, motor delays, BEH, GI and sensory problems. Whenever we are referred to one specialist, it’s like opening a box to find the answer, only to find another box (another specialist referral) which contains another box, and so forth… and whilst I’m not acutely concerned about his health right now, it does feel like we will go on having a spate of minor issues until someone can solve the problem.… Read More »